Saving Lydia: Why I’m Open Sourcing My Baby To Save Her and Millions of Others | by Rohan Seth | Lydian Accelerator | Medium
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My 6 month old daughter was born with a genetic mutation that will leave her severely disabled. We can silence her mutation within months…
5 min read Jul 24, 2019 -- Jen and I both grew up in different countries, studied Computer Science, moved to San Francisco and made it our home. Six months ago, we had our first child, Lydia. Lydia has a random genetic mutation that will leave her severely mentally and physically disabled. She will not sit up, crawl, walk or talk. Some kids have died. We were told her disease was too rare, and there was no treatment, but neither is true. There are millions of children with severe mutations like Lydia’s — and the technology to silence these mutations already exists. Lydia Niru Seth Lydia…
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