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It’s Time to Burn Medical Consent Forms | WIRED
wired.com · 1,223 words · saved by 1 readers
Attempts at reform have not gone far enough. The problem isn’t the documents—it’s how to frame consent in the new health ecosystem.
Save this story Save this story Health data’s potential can be vertigo-inducing, with seemingly limitless insights available to be mined from data sets old and new. The risks, too, can turn the stomach: faulty and biased algorithms; the erosion of privacy; data-driven exploitation. How to explain this to a patient, or a potential research subject? Where to even begin? Apparently, with paperwork. The consent form has traditionally served as a front door to a research project–a summary of what the research is, what participation entails, and what the risks are. All of that information is collect
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